16
MAY
2017

Join Susan Stein, CEO of Connexion Healthcare, at the Rare Patient Advocacy Symposium

On May 19, 2017, Susan will co-host the program “Sharing Patient Voices Throughout the Drug Research and Development Process” with Global Genes and the University of Pennsylvania Orphan Disease Center. The second annual Rare Patient Advocacy Symposium is being held in conjunction...
15
MAY
2017

Spread the Word About Mucopolysaccharidosis on MPS Awareness Day

Fly a paper airplane to help raise awareness about mucopolysaccharidosis (MPS)! Help Connexion Healthcare in our fight against rare disease by joining with us on May 15 for MPS Awareness Day. The National MPS Society is sponsoring events nationwide, encouraging people everywhere...
23
MAR
2017

Meet Our New Oncology Senior Leadership at NCCN 2017

Connexion Healthcare, the first and only strategic scientific communications agency exclusively dedicated to Oncology and Rare Disease, invites you to meet with our Oncology Center of Excellence senior leadership next week at the NCCN 22nd Annual Conference in Orlando, FL. The...
27
JAN
2017

The Eleventh Annual Lemon Ball ― A Great Success!

The Eleventh Annual Lemon Ball, which was held Saturday evening, January 14, 2017, at the Marriott Downtown in Philadelphia, PA, was a great success. More than 900 guests attended, and close to $900,000 was raised. The Lemon Ball celebrates the legacy of Alexandra “Alex” Scott,...
16
NOV
2016

November Is Lung Cancer Awareness Month: What You Don’t Know About Lung Cancer Can Kill You

Lung cancer causes more deaths than any other cancer, both in the United States and worldwide, in men and women alike. One in 13 men and 1 in 16 women will develop lung cancer. Each year, about 200,000 Americans are diagnosed with and another 150,000 Americans die of lung cancer....
26
OCT
2016

Connexion CEO to Speak at AMWA

Susan Stein, CEO of Connexion Healthcare, will speak for the Delaware Valley Chapter of the American Medical Writers Association at the Bucks County Sheraton on 15 November.  The title of her talk is Understanding the MECC Universe and the Important Roles of Medical Writers.  For...
18
OCT
2016

It May Begin With Just One or Two Symptoms: Niemann-Pick Disease

The first clue may simply be a swollen stomach. Or you may see yellowish discoloration of the skin, the telltale sign of jaundice. Or it may begin with difficulty swallowing. Any of these may be the only symptom of Niemann-Pick, a rare disease in its early stage. Niemann-Pick...
04
OCT
2016

Approved Treatments Are Available for the Rare Disorder Gaucher Disease

Gaucher disease is a progressive, chronic, inherited genetic disorder that belongs to a family of diseases known as lysosomal storage disorders. These metabolic diseases are characterized by the buildup of toxic materials in the cells of the body. Although Gaucher disease is the...
23
SEP
2016

Every 2 Minutes a Child Is Diagnosed With Cancer: September Is Childhood Cancer Awareness Month

“Your child has cancer.” Every month worldwide, the parents of 25,000 children hear these devastating words. Every year in the United States, nearly 16,000 children younger than 21 years of age are diagnosed with cancer; about 4,000 of these children will not survive. In the...
12
SEP
2016

How can you, as a patient advocate or caregiver, help advance awareness of clinical trials for new therapies?

Join Susan C. Stein, MPH and CEO of Connexion Healthcare, for a FREE, hour-long webinar “The Powerful and Evolving Role of Patient Advocacy Groups in Clinical Research” at Xtalks on Wednesday, September 14, 2016 at 11am EDT (NA) / 4pm BST (UK) / 5pm CEST (EU-Central) to find out...