05
SEP
2017

First-Ever Gene Therapy Approved by the US FDA: How We Got Here, in a Nutshell

In August 2017 the Food and Drug Administration (FDA) approved the first gene therapy in the United States, KymriahTM (tisagenlecleucel), manufactured by Novartis, for the treatment of patients up to 25 years of age with refractory B-cell precursor acute lymphoblastic leukemia....
01
SEP
2017

Lump or Bump in Your Neck? September is Thyroid Cancer Awareness Month

You have likely heard of hypothyroidism or “low thyroid,” which is commonly associated with fatigue, lethargy, and weight gain, but do you know about cancer of the thyroid gland? The mission of the Oncology Center of Excellence at Connexion Healthcare is to improve patient...
24
AUG
2017

5 Things to Know When Facing the Possibility of a Rare Disease Diagnosis

Do you have a medical condition that you think may be a rare disease? Have doctors not been able to explain what is wrong with you? Then remember to C.H.I.R.P. about it. Calm: Don’t panic! Stay as calm as possible to get through each day. Staying calm will also help you to...
01
AUG
2017

Connexion Healthcare’s Val Sudakin, PhD, Selected as One of “100 Most Inspiring People”

Val Sudakin, PhD, Senior Vice President, Head of Scientific Services at Connexion Healthcare, has been selected by PharmaVOICE as one of 2017’s “100 Most Inspiring People” in the life-sciences industry. Dr. Sudakin is responsible for overseeing all scientific strategy and medical...
30
JUN
2017

Connexion Healthcare Wins a Third APEX Award for Publishing Excellence

Patricia C. Walter, Senior Medical Editor/Writer at Connexion Healthcare, has won a third APEX Award for Publication Excellence, this time in the category of Electronic Publications for her white paper on Companion Diagnostics and Personalized Medicine ― Part II. She had won an...
16
MAY
2017

Join Susan Stein, CEO of Connexion Healthcare, at the Rare Patient Advocacy Symposium

On May 19, 2017, Susan will co-host the program “Sharing Patient Voices Throughout the Drug Research and Development Process” with Global Genes and the University of Pennsylvania Orphan Disease Center. The second annual Rare Patient Advocacy Symposium is being held in conjunction...
15
MAY
2017

Spread the Word About Mucopolysaccharidosis on MPS Awareness Day

Fly a paper airplane to help raise awareness about mucopolysaccharidosis (MPS)! Help Connexion Healthcare in our fight against rare disease by joining with us on May 15 for MPS Awareness Day. The National MPS Society is sponsoring events nationwide, encouraging people everywhere...
23
MAR
2017

Meet Our New Oncology Senior Leadership at NCCN 2017

Connexion Healthcare, the first and only strategic scientific communications agency exclusively dedicated to Oncology and Rare Disease, invites you to meet with our Oncology Center of Excellence senior leadership next week at the NCCN 22nd Annual Conference in Orlando, FL. The...
27
JAN
2017

The Eleventh Annual Lemon Ball ― A Great Success!

The Eleventh Annual Lemon Ball, which was held Saturday evening, January 14, 2017, at the Marriott Downtown in Philadelphia, PA, was a great success. More than 900 guests attended, and close to $900,000 was raised. The Lemon Ball celebrates the legacy of Alexandra “Alex” Scott,...
16
NOV
2016

November Is Lung Cancer Awareness Month: What You Don’t Know About Lung Cancer Can Kill You

Lung cancer causes more deaths than any other cancer, both in the United States and worldwide, in men and women alike. One in 13 men and 1 in 16 women will develop lung cancer. Each year, about 200,000 Americans are diagnosed with and another 150,000 Americans die of lung cancer....