12
SEP
2016

How can you, as a patient advocate or caregiver, help advance awareness of clinical trials for new therapies?

Join Susan C. Stein, MPH and CEO of Connexion Healthcare, for a FREE, hour-long webinar “The Powerful and Evolving Role of Patient Advocacy Groups in Clinical Research” at Xtalks on Wednesday, September 14, 2016 at 11am EDT (NA) / 4pm BST (UK) / 5pm CEST (EU-Central) to find out...
25
AUG
2016

You’ve Heard of Hemophilia—But What About Immune Thrombocytopenia Purpura?

Both diseases are rare bleeding disorders in which blood clotting—the natural process that allows wounds to heal and prevents excessive bleeding—is defective. Yet while most people have likely heard of hemophilia, the so-called “royal disease” that afflicted the young son of Czar...
23
AUG
2016

Women, Pay Attention to Your Bodies! Ovarian Cancer Does Have Symptoms

September is National Ovarian Cancer Awareness Month, as first proclaimed by President Bush in 2008, after a resolution was introduced by Congresswoman Rosa DeLauro, a survivor of ovarian cancer. At Connexion Healthcare, we are helping to spread the message that ovarian cancer...
01
AUG
2016

This August Protect Yourself and Those You Love

Don’t procrastinate, vaccinate! One of the most important things parents can do to help ensure their baby’s long- term health is to make certain that all of their child’s immunizations are complete and up-to-date. But vaccinations are not just for infants, they are f...
08
JUN
2016

June Is Myasthenia Gravis Awareness Month

“He must be on drugs.” “I think she’s drunk.” “What’s wrong with his eyes?” “He’s just lazy. He was perfectly fine the other day. He’s just trying to get out of work . . .  again.” These are some of the comments that the person with myasthenia gravis may not get to hear. They’re...
09
MAY
2016

Did you know that National Minority Cancer Awareness was recognized in April?

If, like many others, you missed it, that’s because it was only for the week of April 10-16 which begs the question: why only 1 week? Typically an entire month is devoted to increasing awareness of specific types of cancers. Since 1987, the third week in April has been designated...
20
APR
2016

April Is International Fabry Disease Awareness Month

April brings with it the warmth of Spring, and nature’s metabolic rejuvenation and regrowth. Ironically, it also ushers in International Fabry Disease Awareness Month. Fabry is a rare inherited disorder of metabolism in which the body does not produce enough of an enzyme called...
17
MAR
2016

Rare Disease Advocates Make Impact Together at Pennsylvania Rare Disease Day 2016

Connexion Healthcare proudly stood with hundreds of rare disease patients, families, advocates, supportive organizations, physicians, the Governor’s office, and state legislators at the Pennsylvania state capitol in Harrisburg yesterday to officially recognize Rare Disease Day...
11
MAR
2016

What Do Seatbelts and Colorectal Cancer Screening Have in Common?

They both save lives.  During March, Americans are urged to pay particular attention to one of the most prevalent—and preventable—cancers, colorectal cancer (CRC). Screening for CRC is proven to save lives, just as seat belts do. The mission of the Oncology Center of Excellence...
02
MAR
2016

Connexion Supports Massachusetts Rare Disease Day 2016

Connexion Healthcare proudly joined forces with MassBio, the National Organization for Rare Disorders (NORD), and 450 attendees for Massachusetts Rare Disease Day 2016 observations in the Great Hall at the Massachusetts State House in Boston on February 29. Patients and their...