26
OCT
2016

Connexion CEO to Speak at AMWA

Susan Stein, CEO of Connexion Healthcare, will speak for the Delaware Valley Chapter of the American Medical Writers Association at the Bucks County Sheraton on 15 November.  The title of her talk is Understanding the MECC Universe and the Important Roles of Medical Writers.  For...
18
OCT
2016

It May Begin With Just One or Two Symptoms: Niemann-Pick Disease

The first clue may simply be a swollen stomach. Or you may see yellowish discoloration of the skin, the telltale sign of jaundice. Or it may begin with difficulty swallowing. Any of these may be the only symptom of Niemann-Pick, a rare disease in its early stage. Niemann-Pick...
04
OCT
2016

Approved Treatments Are Available for the Rare Disorder Gaucher Disease

Gaucher disease is a progressive, chronic, inherited genetic disorder that belongs to a family of diseases known as lysosomal storage disorders. These metabolic diseases are characterized by the buildup of toxic materials in the cells of the body. Although Gaucher disease is the...
23
SEP
2016

Every 2 Minutes a Child Is Diagnosed With Cancer: September Is Childhood Cancer Awareness Month

“Your child has cancer.” Every month worldwide, the parents of 25,000 children hear these devastating words. Every year in the United States, nearly 16,000 children younger than 21 years of age are diagnosed with cancer; about 4,000 of these children will not survive. In the...
12
SEP
2016

How can you, as a patient advocate or caregiver, help advance awareness of clinical trials for new therapies?

Join Susan C. Stein, MPH and CEO of Connexion Healthcare, for a FREE, hour-long webinar “The Powerful and Evolving Role of Patient Advocacy Groups in Clinical Research” at Xtalks on Wednesday, September 14, 2016 at 11am EDT (NA) / 4pm BST (UK) / 5pm CEST (EU-Central) to find out...
25
AUG
2016

You’ve Heard of Hemophilia—But What About Immune Thrombocytopenia Purpura?

Both diseases are rare bleeding disorders in which blood clotting—the natural process that allows wounds to heal and prevents excessive bleeding—is defective. Yet while most people have likely heard of hemophilia, the so-called “royal disease” that afflicted the young son of Czar...
23
AUG
2016

Women, Pay Attention to Your Bodies! Ovarian Cancer Does Have Symptoms

September is National Ovarian Cancer Awareness Month, as first proclaimed by President Bush in 2008, after a resolution was introduced by Congresswoman Rosa DeLauro, a survivor of ovarian cancer. At Connexion Healthcare, we are helping to spread the message that ovarian cancer...
01
AUG
2016

This August Protect Yourself and Those You Love

Don’t procrastinate, vaccinate! One of the most important things parents can do to help ensure their baby’s long- term health is to make certain that all of their child’s immunizations are complete and up-to-date. But vaccinations are not just for infants, they are f...
08
JUN
2016

June Is Myasthenia Gravis Awareness Month

“He must be on drugs.” “I think she’s drunk.” “What’s wrong with his eyes?” “He’s just lazy. He was perfectly fine the other day. He’s just trying to get out of work . . .  again.” These are some of the comments that the person with myasthenia gravis may not get to hear. They’re...
09
MAY
2016

Did you know that National Minority Cancer Awareness was recognized in April?

If, like many others, you missed it, that’s because it was only for the week of April 10-16 which begs the question: why only 1 week? Typically an entire month is devoted to increasing awareness of specific types of cancers. Since 1987, the third week in April has been designated...