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Join Connexion Healthcare at Rare Disease Day 2017 Events

As part of our continued commitment to the Rare Disease community, Connexion Healthcare proudly invites our clients, colleagues and friends to join us at official National Organization for Rare Disorders (NORD) state capitol events celebrating World Rare Disease Day 2017 – in Massachusetts on February 28, and in Pennsylvania on March 14.

 As a proud founding member of the Pennsylvania Rare Disease Advocacy Network (PA RAN), Connexion is also excited to announce that we are once again an official sponsor of Rare Disease Day here in the Keystone State.

 As in past years, our Rare Disease Center of Excellence team members gave their time to help organize Rare Disease Day events. We invite you to register for these events now, and to forward this invitation on to your colleagues, advocates, patients, and others who want to stand with rare disease patients, families, advocates, supportive organizations, physicians, legislators, media, and industry, to help raise awareness of the research, funding, and legislation needed to improve the lives of the more than 30 million Americans affected by a rare disease.

 We hope to see you at one of these Rare Disease Day celebrations. To receive a summary of these events, or to join with us at future events, send an email to rare@connexionhealthcare.com.

 

Massachusetts Rare Disease Day 2017

February 28, 2017, 9:00 AM  – 10:30 AM 

Great Hall, Massachusetts State House

24 Beacon Street, Boston MA 02133

Theme: Role of patient advocacy organizations in advocating for drug approvals

Click here to register.

 

Pennsylvania Rare Disease Day 2017

March 14, 2017, 9:00 AM – 12:00 PM

Pennsylvania State Capitol, Main Rotunda

North 3rd And State Streets, Harrisburg, PA

Theme: Research brings hope to people living with rare diseases

Please click here to register.