The Rare Disease Center of Excellence at Connexion Healthcare specializes in clearly and effectively communicating the science behind rare diseases and orphan drugs, and prides itself on strategically partnering with industry leaders in the rare disease community. Our team is composed of highly skilled experts who plan, develop, and disseminate scientific communications and medical education based on an advanced knowledge not only of the science behind rare diseases, but also of the patient journey, healthcare providers, and the orphan drug approval process that are unique to the rare disease community.
Committed to the Rare Disease Community
Connexion Healthcare is an active Corporate Alliance Member of Global Genes (http://globalgenes.org/), serving on its Patient Access and Healthcare Provider Outreach committees, and has co-sponsored rare disease awareness events with the National Organization for Rare Disorders (NORD, http://www.rarediseases.org/). Our team also regularly works with and supports multiple rare disease patient advocacy organizations.
Connexion Healthcare team members have a personal connection with, and passion for, assisting patients and caregivers affected by rare diseases. Since launching its dedicated Rare Disease Center of Excellence, Connexion has been vital in developing prelaunch, launch, and postlaunch communications and education for the healthcare community on numerous rare congenital and genetic disorders, including movement disorders, metabolic disorders, lysosomal storage disorders, lung diseases, blood diseases, skin diseases, endocrine diseases, and rare cancers.
For facts about Rare Disease, go to http://connexionhealthcare.com/rare-disease/about/
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